Discover SOHONOS®Resources to support your treatment journey
Your doctor has prescribed SOHONOS®, a medication used to treat adults and children (females ≥8 years and males ≥10 years) with fibrodysplasia ossificans progressiva (a genetic disorder, also known as FOP). It helps reduce the formation of heterotopic ossification, a condition where bone forms outside the skeleton.
Did you know?There is a patient support program for SOHONOS® known as IPSEN CARES® that is designed to help support you.
To learn more about the services available to you, contact us at 1-855-215-2288 (Option 2)
from Monday to Friday (9 a.m. to 6 p.m. ET).
Patient Resources
Download and review the materials in this library to help you gain a better understanding of SOHONOS®, from how it works to how it will be given, to the side effects you may experience along your treatment journey.
Check back from time to time – new materials will be added as they are released.
Explore the IPSEN CARES® program
The program offers an array of services to assist your patients along their SOHONOS® treatment journey.
At-home medication delivery
- Optional home delivery of medication
- In-depth product counselling by a certified pharmacist if dispensed through the program
Registered Nurse case managers
- Provide continuous support to you and your caregivers, when needed
- Investigate financial access options
- Submit applications for drug coverage
- Check-in calls to ensure you can ask questions about and access support for your treatment plan
IPSEN CARES® welcome kit for patients and caregivers
- Includes materials to support you or your child during treatment with SOHONOS®
Call Centre service
- Offers ongoing support for you and your healthcare provider team
- All inquiries will be responded to within 1 business day
Contact us at 1-855-215-2288 (Option 2)
If your physician has prescribed you SOHONOS®, you are eligible to be enrolled in the IPSEN CARES® program.
If you have any questions, please contact IPSEN CARES® at 1-855-215-2288 (Option 2) from Monday to Friday (9 a.m. – 6 p.m. ET).
Patient Support Networks
There are Canadian and international organizations dedicated to providing information and support to people living with FOP. The following is provided as a resource for you and your caregivers and does not constitute an endorsement by Ipsen of any particular organization:
Canadian FOP Network
Volunteer non-profit charity that offers educational materials, online events such as conferences, a blog where patients can share their stories, and other helpful resources.
International FOP Association
Non-profit organization that raises awareness about FOP by organizing events and sharing research in the field.
It also provides education and support to individuals with FOP and their families.
Contact Us
Ipsen Medical Information
To request Medical Information or report an adverse event or product quality complaint for SOHONOS®, please contact Ipsen Canada Medical Information at:
1-855-215-2288
